Nasha Fitter co-founded the FOXG1 Research Foundation shortly after her daughter Amara was diagnosed with FOXG1 syndrome. She is dedicated to leading our research strategy to find a cure for every child in the world who has FOXG1 syndrome. Nasha heads the rare and neurological disease division for Ciitizen, a technology company that enables fast and seamless access to patient data. She is also on the public board of the ACMG Foundation for Genetic and Genomic Medicine. Formerly, Nasha was the founder and CEO of tech startup Schoolie, which was acquired in 2016 by GreatSchools, as well as a Director at Microsoft Corp. Nasha has an MBA from the Harvard Business School.

Nicole Johnson is the co-founder of the FOXG1 Research Foundation and mother to eight-year-old Josie, who has a severe mutation of the FOXG1 gene. With more than two decades of experience in media and communications, Nicole leads our communications strategy, as well as patient advocacy, and business development. Formerly, Nicole was a co-founder and the Director of Communications of the OTT streaming music service, Qello Concerts that was sold to media conglomerate, Stingray in 2018. Prior to starting Qello in 2007, Nicole worked many years as a producer for CNN and for NBC , and then moved into Corporate Communications for several Fortune 500 companies. Nicole is also a member of the East Lake Consulting team based in New York.