First Bite #121 – October 20, 2020

Facing the Facts with FOXG1 Research Foundation

(.1 ASHA and AOTA CEUs) For more info, click here.

Course Description

In this episode, Michelle is joined by Natasha Fitter, CEO, and Head of Research, as well as Nicole Johnson, President of Communications, for FOXG1 Research Foundation. These two co-founders are here to share how their very personal parenting walks of children with FOXG1 Syndrome, led to the birth of this amazing Research Foundation that is changing the lives of countless children around the world. FOXG1 is known for causing varied and severe Pediatric Feeding Disorders. Not only will Natasha and Nicole share the history of the Foundation, but they will also discuss their latest research, and recommendations for best practices for the evaluation and treatment of individuals with PFDs secondary to FOXG1. This hour will tug at your heartstrings and leave you feeling impassioned and empowered!


By the end of this PodCourse, participants will be able to identify and describe:

  • What FOXG1 condition and the s/s used to diagnosis the disorder.
  • The purpose of the FOXG1 Research Foundation.
  • Common PFD unique to FOXG1 and recommend professionals to evaluate and treat individuals with this disorder.


Natasha Fitter

Nasha Fitter co-founded the FOXG1 Research Foundation shortly after her daughter Amara was diagnosed with FOXG1 syndrome. She is dedicated to leading our research strategy to find a cure for every child in the world who has FOXG1 syndrome. Nasha heads the rare and neurological disease division for Ciitizen, a technology company that enables fast and seamless access to patient data. She is also on the public board of the ACMG Foundation for Genetic and Genomic Medicine. Formerly, Nasha was the founder and CEO of tech startup Schoolie, which was acquired in 2016 by GreatSchools, as well as a Director at Microsoft Corp. Nasha has an MBA from the Harvard Business School.


Nicole Johnson

Nicole Johnson is the co-founder of the FOXG1 Research Foundation and mother to eight-year-old Josie, who has a severe mutation of the FOXG1 gene. With more than two decades of experience in media and communications, Nicole leads our communications strategy, as well as patient advocacy, and business development. Formerly, Nicole was a co-founder and the Director of Communications of the OTT streaming music service, Qello Concerts that was sold to media conglomerate, Stingray in 2018. Prior to starting Qello in 2007, Nicole worked many years as a producer for CNN and for NBC , and then moved into Corporate Communications for several Fortune 500 companies. Nicole is also a member of the East Lake Consulting team based in New York.